A Project for patients
MyCyFAPP focuses on promoting
and maintaining
adequate nutritional behaviors
by promoting an active
role of the patient.
The set of digital tools
created for patients and their caregivers
aim at increasing their
knowledge of the disease
by offering them tools for self-managing their nutrition
Digital ecosystem
MyCyFAPP has developed a set of digital tools
scientifically based,
for helping patients with cystic fibrosis and their families
to self-manage the nutritional aspects
of the disease
with the close supervision of their
healthcare professional team.
Tools for professionals
Tools developed within MyCyFAPP
have a key role as a decision support system.
Based on scientific evidence, the tools allow
for a continuous follow-up
and establishing interventions
if needed, improving the quality of life of patients
together with economic saves
for the families and the Health System.
What is cystic fibrosis?
Cystic Fibrosis is a genetic disorder that affects organs that secrete mucus such as lungs, pancreas, liver and intestine. Cystic fibrosis makes mucus stickier than normal making organs working less effectively. It causes recurrent pulmonary infections, absence of digestive enzymes in the gut and excessive salt loss in the sweat.
The majority of patients with Cystic Fibrosis suffer from lifelong pancreatic insufficiency leading to maldigestion of foods and malabsorption. Malnutrition and growth stunting can be avoided by accurate enzyme replacement therapy and a close nutritional follow up and support as well as by early nutritional intervention.
How can MyCyFAPP help patients
Due to the pancreatic insufficiency patients have to follow an Enzymatic Replacement Therapy. Calculating the optimal dosage of supplementary enzymes is a challenge since it depends on the characteristics of each meal.
MyCyFAPP has developed a model validated through in vitro digestion studies that is able to predict the optimal amount of supplementary enzymes for each meal.
MyCyFAPP has a special focus on nutrition as a balanced diet is a fundamental pillar for the wellbeing of patients. For this reason, the Project has generated educational resources for helping patients to improve their nutritional status. Tools are incorporated in a mobile software so patients can make use of it any time they need.
A European Project
My Cystic Fibrosis Application is funded by the European Commission under Grant Agreement number 643806. Created in 2015 is composed by 12 European organizations.
The multidisciplinary team comprises health institutions, biomedical research centers, IT developers, gaming companies and patients’ representatives.
Since January 2018, around 200 patients from five European countries are participating in the clinical trial that will last until October 2018.
