Videos

How can an app improve the general wellbeing of patients with cystic fibrosis?

"It is not only an APP able to predict the amount of enzymes you need to take, it also offers you a nutritional guide, where you can register your feelings" Jose Carlos, Cystic Fibrosis patient.

In vitro digestion method

In vitro digestion studies are applied to mimic the in vivo physiological conditions of the digestion process by taking into accounts digestive enzymes, pH, digestion time and salt concentration of the digestive fluids. This video offers a step by step description of the process.

"It is not only an APP able to predict the amount of enzymes you need to take, it also offers you a nutritional guide, where you can register your feelings" Jose Carlos, Cystic Fibrosis patient.

Testimonials

Thanks to those who have made this Project possible

It would have been impossible to develop this Project without the contribution of patients who participated in the clinical trial and those who helped our ICT team to develop the best possible app. Thanks for making this project possible. Thanks for helping the whole Cystic Fibrosis community. Thanks for contributing to a better future.

Which patients benefit the most from the use of the application?

Professoressa Colombo, from Università degli Studi di Milano explains who has benefited the most from the use of the self-management APP those six months of clinical trial.

"The APP has satisfied our expectations"

Thanks for helping us to advance in the research of nutrition in cystic fibrosis. Play the video if you want to listen to their testimonial.

Building teenagers' confidence

Growing up means learning to be independent and learning to take care of yourself. When having a chronic condition, is not so easy to do so for this reason tools as the ones developed by MyCyFAPP are essential for guiding teenager in their path to adulthood.

The Game

MyCyFAPP Project is an EU-funded research and innovation project that aims to develop an innovative tool for helping Cystic Fibrosis patients to get a real-time optimal enzyme dosage prediction for a specific meal. The Project has also developed an APP game to help children to understand how a good nutrition can help them to improve their health status.

The benefits of the self-management APP

A Project for helping families

MyCyFAPP Project aims to help families to manage Cystic Fibrosis not only by improving the calculation of Pancreatic Enzyme Replacement Therapy but also by helping them to understand the illness. Accurate information, based on scientific knowledge written in lay language including images and visual material are keys to improve understanding and to help patients to become actively involved in their treatment.

Why research is important for cystic fibrosis families

When you suffer from a chronic disease, you probably know why research can make a difference to many people's lives. As one of the patients explains, MyCyFAPP aims to get reliable result to improve the quality of life of people with Cystic Fibrosis.

How MyCyFAPP started

When we started to look for solutions we realized that there was nothing to help patients to calculate their optimal pancreatic dose based on scientific evidence… so… we started to think about a solution

A European Project

At MyCyFAPP we are fully convinced that European collaboration is the forward for any project, because together we reach more people and find better solutions.

Living with Cystic Fibrosis: The Nutritional Handbook

MyCyFAPP offers a new approach to healthcare in which patients have an active role. For this reason, the educational tools are of the utmost importance. The self-management APP contains a guide of nutrition in cystic fibrosis.

How ehealth contributes to giving confidence to patients

SINTEF has had an important role at MyCyFAPP guaranteeing that the APP designed fits patients needs. Jacqueline Floch explains how ehealth tools together with educational resources can contribute to boost the role of active patients with the support of their health care professionals

What is codesign?

"Codesign is essential for understanding what is important for patients and what could benefit them by using an APP”

The Professional Web Tool

Patients with chronic illness need to know they can count on the help of Health Care Professionals, for this reason, the Web Professional Tool is linked to the self-management APP. In this way, the data patients introduce in their mobiles is automatically sent to their healthcare team, saving time and accessing to a faster feedback.

What is MyCyFAPP?

"Codesign is essential for understanding what is important for patients and what could benefit them by using an APP”

A Project for patients

"Patients had been waiting for a tool as the self-management APP for helping them to calculate their optimal dose of pancreatic enzymes so when we suggested them to participate in the clinical trial, their reaction was very positive"

Demo

How to use MyCyFAPP self-management APP

The self-management APP includes some of the features patients said were important for them. It also includes the possibility of creating recipes by using household measures such as "a spoon" or "a cup" o "a slice" making easier for families using it. Take a look at it by playing the video!